Each day in the US, 60 families will learn that their child has autism. Over the coming years, parents will be consumed with managing a complex coordination of educational, medical, and behavioral health care.
When their child turns 21, however, those services will most likely end and their child faces the next 60 years as an adult with autism with little support, understanding, or options for housing, employment or social interaction.
Surprisingly, little has been done to collect data or to understand the issues, challenges, potential, and possibilities of the rapidly growing number of adults with autsim.
Madison House Autism Foundation is currently engaged in a multi-disciplinary research project, producing a whitepaper and national blueprint to map the way forward – for adults with autism, parents, communities and governments, private sector entities, and non-profits. With data and research, we can make model housing projects, supportive employment, and collaborative family savings plans an informed reality. Results of the research will benefit a wide range of initiatives including:
- Housing (including such models as CSAAC, Southwest Autism Research & Resource Center (SARRC), and the Farm Model);
- Typical healthcare for a non-typical population;
- Ongoing education for those on the spectrum and for those working with them;
- Education of physicians and first responders;
- Recreation, socialization and community inclusion; and
- Transportation to support greater independence.
You can be part of the research. Please share with us your ideas and your concerns about the future. Whether you are on the spectrum, a caregiver, parent or policy maker, please tell us:
- What is your view of the future?
- Do you see as the greatest challenges and the stumbling blocks in the road ahead?
- What resources and data would be most helpful to you in shaping a brighter future?
Contact Adrienne McBride at info (at) madisonhouseautism (dot) org
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